(via Megan Coder, State University of New York at New Paltz)
My name is Megan Coder and I am an Associate Librarian at the State University of New York at New Paltz. I am conducting research which will be exploring how individuals search for and use information when confronted with a serious medical diagnosis.
I am specifically looking for individuals who have experienced a terminal cancer diagnosis of a family member or loved one that involved a predicted lifespan (e.g. 5 months, 2 years, etc.). I have developed a Qualtrics survey linked here<https://newpaltz.co1.qualtrics.com/jfe/form/SV_ddpGXbb4gGh77Rr> that asks questions pertaining to informational needs and behaviors, types of resources consulted, and how the information was used.
If you are at least 18 years of age or older, fit the above criteria, and want to participate in my study, please click here<https://newpaltz.co1.qualtrics.com/jfe/form/SV_ddpGXbb4gGh77Rr> to access my survey.
This project has been approved by the State University of New York at New Paltz Human Research Ethics Board. The survey consists of 40 questions and will take approximately 20 minutes to complete. Your time and participation are very much appreciated. Participation in this study is completely voluntary. If at any time you feel uncomfortable proceeding with the survey, you may exit it at any time.
The survey will remain open and available until Friday, November 30, 2018.
Your responses will remain strictly confidential and will be used for research purposes only. You will not be asked to provide any identifying information.
Please note, at the end of the survey there is a question that will ask if the participant is interested in participating further in a separate study about this research. If participants are interested, they will submit their email address in a separate survey. The e-mail addresses will not be connected to the survey data that was submitted.
If you have any questions, please contact Megan Coder (coderm@newpaltz.edu<mailto:coderm@newpaltz.edu><mailto:coderm@newpaltz.edu>).
Please feel free to forward this email invitation to anyone you know who has experienced a terminal cancer diagnosis of a loved one that involved a predicted lifespan.
Thank you in advance for your time and participation!