(via the Medical Library Association)
Registration is open for the MLA webinar “Sharing it Ethically: Research Lifecycle Support for Sharing Human Participants Data”. It will take place on Tuesday, August 15, from 1:00 to 2:30 PM CDT. Please see below for more details, including the link to registration.
Researchers are increasingly required by funders and publishers to share their data. Health sciences researchers whose work involves human participants must negotiate a particularly complicated process to ensure that their data is shared ethically. Health sciences librarians are uniquely positioned to guide these researchers through the data sharing process.
Jennifer Darragh, a Senior Research Data Management Consultant in the Center for Data and Visualization Sciences at the Duke University Libraries, knows intimately the challenges researchers face in sharing human subjects data. Using case studies, critical thinking exercises, and lecture, she will guide you in advising researchers on how to:
- Address ethical aspects of data collection, preparation, storage, and dissemination of human participants research.
- Write consent forms that address data sharing beyond the initial purposes of a project
- Determine if they have a secure environment to process and analyze human subjects data
- Evaluate data repositories for “best fit” based on the type of human participants data and required security levels.
She will also speak to data colonialism and ways to put participants first when determining the benefits of data sharing. You’ll receive a list of resources that will help you deepen and extend your understanding of how to share human subjects data.
This webinar is approved for the “under construction” Level II of the Data Services Specialization. A Level I Data Services Specialization Certificate is currently available.
For more information, and to register, please go here.